Podcast Index

Podcasts

Explora podcasts por categoría, abre episodios recientes y descarga audio para escucharlo sin conexión.

CURE SYNGAP1 PODCAST aka SYNGAP10 CURE SYNGAP1 PODCAST aka SYNGAP10 Syngap Research Fund, 501(c)(3) The Arora #CanPassWillPass Podcast The Arora #CanPassWillPass Podcast Dr Aman Arora Átomos y Bits Átomos y Bits Agencia EFE geister - der philosophie-podcast geister - der philosophie-podcast Christian Eichler Radiolab Radiolab WNYC Studios The Future of Everything The Future of Everything Stanford Engineering AgTech Digest AgTech Digest AgTech Media Group Power Struggle Power Struggle Stewart Muir Media Animal Posse Animal Posse Unwanted Feline Organization Physics World Stories Podcast Physics World Stories Podcast Physics World 天方烨谈 天方烨谈 基因频道 A Cut Above: Horror Review A Cut Above: Horror Review A Cut Above: Horror Review The Digital Twin Theory The Digital Twin Theory VPH- The Society for In Silico Medicine TED-Ed TED-Ed TED-Ed Thrilling Threads - Conspiracy Theories, Strange Phenomena, True Crime, Unsolved Mysteries, etc! Thrilling Threads - Conspiracy Theories, Strange Phenomena, True Crime, Unsolved Mysteries, etc! Byte & Pieces CountrySlide CountrySlide Negus, McInerney-Riley, Prideaux Dark Mysteries — Unsolved Mysteries. Forgotten Secrets. Unanswered Questions. Dark Mysteries — Unsolved Mysteries. Forgotten Secrets. Unanswered Questions. Darkest Mysteries Online Minnesota CropCast Minnesota CropCast University of Minnesota Extension European Urology Podcast European Urology Podcast Declan Murphy & European Urology Family Dive Deep Dive Deep LifeFuel365 BTW Podcast BTW Podcast BTW Podcast Diabetes Insights - Breakthroughs and Innovators Diabetes Insights - Breakthroughs and Innovators EASD - European Association for the Study of Diabetes solarsorglos.de - Der Solar Podcast solarsorglos.de - Der Solar Podcast Maik Marx und Solaria Bigfoot Society Bigfoot Society Jeremiah Byron Podcast de Juan Ramón Rallo Podcast de Juan Ramón Rallo Juan Ramón Rallo Rambam Yomi Rambam Yomi Rav Yoel Usher Labin and Rav Yitzchok Lowy What The Duck?! What The Duck?! ABC Australia Adventure Sports Podcast Adventure Sports Podcast Curt Linville Understand All Understand All Aaron Barlow Short Wave Short Wave NPR The Jordan Harbinger Show The Jordan Harbinger Show Jordan Harbinger BirdNote Daily BirdNote Daily BirdNote Oigamos la Respuesta-ICECU Oigamos la Respuesta-ICECU Oigamos la Respuesta-ICECU TED Radio Hour TED Radio Hour NPR AI Talks with Bone & Joint AI Talks with Bone & Joint AI Talks with Bone & Joint GOTO - The Brightest Minds in Tech GOTO - The Brightest Minds in Tech GOTO Beersos Beersos Nicolas Phonsavath & Derek Zhu
CURE SYNGAP1 PODCAST aka SYNGAP10

Ciencia

CURE SYNGAP1 PODCAST aka SYNGAP10

Syngap Research Fund, 501(c)(3)

We need a #SYNGAP1 mouse lab? #BIO2026 #MDBR 19 days for Merch. #GeneticTesting #ASOwebinar #S10e211

June 25, 2026 11:43pm 9 min

Friday, June 26, 2026 - Week 26   BIO was good.  Need a mouse lab to test molecules all year long.   https://www.linkedin.com/posts/graglia_syngap-syngap1-mousemodels-ugcPost-7476041484408901633-Zldd/    MDBR was big, no...

#ILoveSomeoneWithSYNGAP1. June 21 is SYNGAP1 Awareness day. $159 rooms at the GrandHyatt! #S10e210

June 19, 2026 10:53pm 9 min

Friday, June 19, 2026 - Week 25   June 21 is SYNGAP1 Awareness Day, but we have made it SYNGAP1 Awareness month!  Why 6/21? Because 6p21.32  Donate!  cureSYNGAP1.org/Donate    #ThisIsOursToLose & #BurdenHopeProgress watc...

#NightOfImpact a huge success & we are lucky to have Dr. Helen R Willsey. #S10e209

June 11, 2026 2:25pm 9 min

Wednesday, June 10, 2026 - Week 24   #NightOfImpact was 15 Days ago! Photos: https://jeaniehorton.pixieset.com/curesyngap1nightofimpact2026/ Impact: $800k+, of which $300 was our match.  Industry: Multiple Academics & Cl...

Tony update. #ThisIsOursToLose. More great results from $CAMP4. #NightOfImpact in 9 days! #S10e208

May 19, 2026 12:34pm 9 min

Tuesday, May 19, 2026 - Week 21   Personal Update via Syngap Stories: Page: cureSYNGAP1.org/stories41  Post: https://www.linkedin.com/posts/syngap1stories-syngap1-curesyngap1-share-7462125026276777984-OVBr   #ThisIsOursT...

Earnings reports: CAMP4 files. Stoke optimizing. Praxis on track. 2026 Video! #S10e207

May 08, 2026 5:40pm 9 min

Friday, May 8, 2026 - Week 19   CURE SYNGAP1 STRATEGY WORKING Our strategy has always been to derisk SYNGAP1 so that industry will invest and bring their skill and capital to bear.  We leverage donor dollars to maximize ...

Longitudinal Data Matters! Prioritized list of studies! #Sprint4SynGAP a great success! #S10e206

May 06, 2026 5:12pm 9 min

Wednesday, May 6, 2026 - Week 19   Congrats to GETA, CURE SYNGAP1 Australia & CAMP4 for a great weekend. https://www.linkedin.com/posts/syngap1-epilepsy-ugcPost-7457791427486466048-j8SB   WEBINARS! CURE-ID Webinar tomorr...

Comment on Haystack Petition to FDA. New Board of Trustees. #ICD10 F78.A1 #CureID #S10e205

April 21, 2026 1:12pm 9 min

Monday, April 20, 2026 - Week 17   CURE SYNGAP1 joins the Haystack Project in petitioning FDA for more clarity. PR: https://static1.squarespace.com/static/5966cc2220099e91326caaec/t/69d7dbb80155f46e144ae2e5/1775754168227...

Global Advocacy. #NL51. Snippets! #SYNGAPcensus = 1,761. UT Arlington & Cook Children’s. #S10e204

April 14, 2026 4:35pm 9 min

Tuesday, April 14, 2026 - Week 16   Census is 1,761 https://curesyngap1.org/blog/syngap1-census-2026-update-54-q1-total-1761   Trip to Texas for UT Arlington and Cook Children's Systems innovation with Dr. Lal and Dr. P...

DSC-III and Data - CURE SYNGAP1 is working tirelessly to increase SYNGAP1 Knowledge #S10e203

April 03, 2026 8:03pm 9 min

Friday, April 3, 2026 - Week 14   Just back from the DSC-III Kickoff Meeting!  As announced back in September 2025.  Really strong group of clinicians.   https://dsc.rarediseasesnetwork.org/patient-advocacy-groups   More...

It is time to get ready for clinical trials, this is how. #S10e202

March 26, 2026 11:44am 9 min

Thursday, March 26, 2026 - Week 13   Thanks for NL50 Ed!  cureSYNGAP1.org/NL50,  I listened to Episode 1 and, as it turns out, it was March 12, 2021 (five 5️⃣ years ago), and it’s evergreen.   SEVEN THINGS YOU NEED TO DO...

We need to raise funds for the critical work of CURE SYNGAP1, join us with #Sprint4SYNGAP #S10e201

March 06, 2026 10:44am 9 min

Friday, March 6, 2026 - Week 10   WHAT DO WE NEED $ FOR? I talked in Episode 197 #S10e197 about scientific priorities, and in Episode 200 #S10e200 about areas of activity beyond science grants.  All of this is what we ne...

#RareDiseaseWeek! We are doing much beyond grants… too much. Get the Citizen Health App! #S10e200

February 25, 2026 11:35am 9 min

Wednesday, February 25, 2026 - Week 9   Thank you Virginie, Eric & Paulina for being in Cold DC right now with the Everylife Foundation!  https://www.linkedin.com/posts/curesyngap1_raredc2026-syngap1-curesyngap1-activity...

Support Clinical Trial Design for #SYNGAP1 via biobanks, EEGs and Fundraising. #S10e199

February 17, 2026 2:46pm 9 min

Tuesday, February 17, 2026 - Week 8   We are flat out, thank you to the team who work full-time on SYNGAP1: VM KAH LP PP & KF.   CLINICAL TRIAL DESIGN We are Angelman-like. (Rett also) https://aesnet.org/abstractslisting...

All #SYNGAP1 Families need to take part in our Natural History Studies: ProMMiS & Citizen #S10e198

February 06, 2026 11:56am 9 min

Thursday, February 5, 2026 - Week 6 Happy #RareDisease & #BlackHistory Month!   #NaturalHistory means how this disease progresses.  Reminder: We have only been at this for 17 years, first patients were identified via Ham...

Funding Priorities. Biorepository. Genetic Testing. How to move for a clinical trail! #S10e197 Monday, February 2, 2026 - Week 6

February 02, 2026 6:05pm 9 min

All US Families, please take the time to fill out the ProMMiS Survey. It takes 5 minutes. It's super important. Even if you haven't been there, we need your feedback. English: https://curesyngap1.org/SurveyProMMiS   Span...

Stoke Tx shows us that ASO Clinical Development is accelerating. #S10e196

January 16, 2026 10:23am 9 min

Friday, January 16, 2026 - Week 3   Stoke Phase 3 Rapid Recruitment - A timeline that is ours to beat! https://investor.stoketherapeutics.com/news-releases/news-release-details/stoke-therapeutics-announces-updates-timeli...

SYNGAP1 Related Disorder (SRD) Key Talking Points & why we need to use them. #S10e195

January 11, 2026 2:18pm 9 min

Saturday, January 10, 2026 - Week 2   Here are key talking points to reference when talking about SRD.   Please let us know your thoughts about how these could be better. https://docs.google.com/document/d/1lXaDQEVwF1K_y...

Becky Quick launches CNBC Cures, Finding Your Voice & Key Talking Points for SRD! #S10e194

January 09, 2026 12:18pm 9 min

Friday, January 9, 2026 - Week 2   Big news in SYNGAP-land, Becky Quick and Matt Quayle have a beautiful SynGAPian named Kaylie & they are launching CNBC Cures! - Wonderful to have more awareness of SYNGAP1, I hope it le...

Stockdale Paradox: Not getting out at Xmas, but we will win. #SynGAPCensus = 1,707. #S10e193

January 02, 2026 4:22pm 9 min

Friday, January 2, 2026 - Week 1   #SynGAPCensus = 1,707 https://curesyngap1.org/blog/syngap1-census-2025-update-32-q4-2025-1707/   From the Cantor Report on CAMP4  The Stockdale Paradox. The best way to succinctly descr...

AES ‘25 was incredible, Fundraising, PRV, Behaviors, Posters/Pubmed & Thank you. #S10e192

December 20, 2025 8:33pm 9 min

Saturday, December 20, 2025 - Five days till Christmas, 11 days left to raise funds to CURE SYNGAP1 AES was exceptional in many ways, here are a few: Rare & SYNGAP1 were both very visible, posters with our Logo and name...

Envía tu emisora ​​favorita

Completa el formulario de abajo. Asegúrate de seleccionar tanto País como Géneros.

Nombre
Categoría
Mantenga presionada la tecla Ctrl (Cmd en Mac) para seleccionar varios.
URL de transmisión
Logo (JPG, JPEG o PNG)

Contáctanos

Envíanos un mensaje abajo. Te responderemos en un plazo de 24 horas.

Asunto
Tu nombre
Correo electrónico
URL de la emisora o de la página
Mensaje
Cuanto es 19 más 2?
También adjuntamos tu país, navegador, página actual y algunos datos técnicos para ayudarnos a investigar.