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CURE SYNGAP1 PODCAST aka SYNGAP10 CURE SYNGAP1 PODCAST aka SYNGAP10 Syngap Research Fund, 501(c)(3) Seventy3 Seventy3 任雨山 Accès au Marché Mondial des Dispositifs Médicaux Accès au Marché Mondial des Dispositifs Médicaux Pure Global Глобальный доступ на рынок медицинских изделий Глобальный доступ на рынок медицинских изделий Pure Global चिकित्सा उपकरण वैश्विक बाजार पहुंच चिकित्सा उपकरण वैश्विक बाजार पहुंच Pure Global Tıbbi Cihazlar Küresel Pazar Erişimi Tıbbi Cihazlar Küresel Pazar Erişimi Pure Global Akses Pasar Global Alat Kesehatan Akses Pasar Global Alat Kesehatan Pure Global Travelers In The Night Travelers In The Night Albert D. Grauer Dark Mysteries — Unsolved Mysteries. Forgotten Secrets. Unanswered Questions. Dark Mysteries — Unsolved Mysteries. Forgotten Secrets. Unanswered Questions. Darkest Mysteries Online Yoga Therapy Hour with Amy Wheeler Yoga Therapy Hour with Amy Wheeler Amy Wheeler Science Tech Brief By HackerNoon Science Tech Brief By HackerNoon HackerNoon Futurism Tech Brief By HackerNoon Futurism Tech Brief By HackerNoon HackerNoon Alexis Knight l Facts First. Clarity Always. Alexis Knight l Facts First. Clarity Always. Alexis Knight | Facts First. Clarity Always. Rewilding Earth Podcast Rewilding Earth Podcast The Rewilding Institute Typical Skeptic Podcast Typical Skeptic Podcast Robert Kalil A Debt in Blood A Debt in Blood Frontline Fiction Studios Systemrelevant - Fakten für eine demokratische und nachhaltige Wirtschaft Systemrelevant - Fakten für eine demokratische und nachhaltige Wirtschaft Hans-Böckler-Stiftung The Human Upgrade: Biohacking for Longevity & Performance The Human Upgrade: Biohacking for Longevity & Performance Dave Asprey Beyond the Void: Philosophy & Psychology for the Modern Mind Beyond the Void: Philosophy & Psychology for the Modern Mind btv The Humble Hoof The Humble Hoof Alicia Harlov Molecule to Market: Inside the outsourcing space Molecule to Market: Inside the outsourcing space Raman Sehgal Jimmy Akin's Mysterious World Jimmy Akin's Mysterious World Jimmy Akin Climate Connections Climate Connections Yale Center for Environmental Communication مَنبِت | Manbet مَنبِت | Manbet Sowt Media | صوت Neuro-Oncology: The Podcast Neuro-Oncology: The Podcast Neuro-Oncology Τα podcasts του Newshub.gr Τα podcasts του Newshub.gr newshub.gr Sensible Medicine Sensible Medicine Sensible Medicine Authors and Editors A Conversation in Veterinary Pathology - The A.C.V.P. Podcast A Conversation in Veterinary Pathology - The A.C.V.P. Podcast The American College of Veterinary Pathologists Chicago Weather Daily Chicago Weather Daily Fast Foundations Clima Diario Ciudad de México Clima Diario Ciudad de México Fast Foundations Why Should I Trust You? Why Should I Trust You? Brinda Adhikari, Tom Johnson, Maggie Bartlett, Dr. Mark Abdelmalek Ion Genomics Podcast Ion Genomics Podcast Andrew P. Han Daily Short Stories - Ghost and Horror Stories Daily Short Stories - Ghost and Horror Stories Sol Good Network Neville Goddard Daily Neville Goddard Daily Neville Goddard Science Fiction - Daily Short Stories Science Fiction - Daily Short Stories Sol Good Network Stories - Science Fiction Stories - Science Fiction Sol Good Network Daily Science Fiction Stories Daily Science Fiction Stories solgoodmedia.com
CURE SYNGAP1 PODCAST aka SYNGAP10

Science

CURE SYNGAP1 PODCAST aka SYNGAP10

Syngap Research Fund, 501(c)(3)

We need a #SYNGAP1 mouse lab? #BIO2026 #MDBR 19 days for Merch. #GeneticTesting #ASOwebinar #S10e211

June 25, 2026 11:43pm 9 min

Friday, June 26, 2026 - Week 26   BIO was good.  Need a mouse lab to test molecules all year long.   https://www.linkedin.com/posts/graglia_syngap-syngap1-mousemodels-ugcPost-7476041484408901633-Zldd/    MDBR was big, no...

#ILoveSomeoneWithSYNGAP1. June 21 is SYNGAP1 Awareness day. $159 rooms at the GrandHyatt! #S10e210

June 19, 2026 10:53pm 9 min

Friday, June 19, 2026 - Week 25   June 21 is SYNGAP1 Awareness Day, but we have made it SYNGAP1 Awareness month!  Why 6/21? Because 6p21.32  Donate!  cureSYNGAP1.org/Donate    #ThisIsOursToLose & #BurdenHopeProgress watc...

#NightOfImpact a huge success & we are lucky to have Dr. Helen R Willsey. #S10e209

June 11, 2026 2:25pm 9 min

Wednesday, June 10, 2026 - Week 24   #NightOfImpact was 15 Days ago! Photos: https://jeaniehorton.pixieset.com/curesyngap1nightofimpact2026/ Impact: $800k+, of which $300 was our match.  Industry: Multiple Academics & Cl...

Tony update. #ThisIsOursToLose. More great results from $CAMP4. #NightOfImpact in 9 days! #S10e208

May 19, 2026 12:34pm 9 min

Tuesday, May 19, 2026 - Week 21   Personal Update via Syngap Stories: Page: cureSYNGAP1.org/stories41  Post: https://www.linkedin.com/posts/syngap1stories-syngap1-curesyngap1-share-7462125026276777984-OVBr   #ThisIsOursT...

Earnings reports: CAMP4 files. Stoke optimizing. Praxis on track. 2026 Video! #S10e207

May 08, 2026 5:40pm 9 min

Friday, May 8, 2026 - Week 19   CURE SYNGAP1 STRATEGY WORKING Our strategy has always been to derisk SYNGAP1 so that industry will invest and bring their skill and capital to bear.  We leverage donor dollars to maximize ...

Longitudinal Data Matters! Prioritized list of studies! #Sprint4SynGAP a great success! #S10e206

May 06, 2026 5:12pm 9 min

Wednesday, May 6, 2026 - Week 19   Congrats to GETA, CURE SYNGAP1 Australia & CAMP4 for a great weekend. https://www.linkedin.com/posts/syngap1-epilepsy-ugcPost-7457791427486466048-j8SB   WEBINARS! CURE-ID Webinar tomorr...

Comment on Haystack Petition to FDA. New Board of Trustees. #ICD10 F78.A1 #CureID #S10e205

April 21, 2026 1:12pm 9 min

Monday, April 20, 2026 - Week 17   CURE SYNGAP1 joins the Haystack Project in petitioning FDA for more clarity. PR: https://static1.squarespace.com/static/5966cc2220099e91326caaec/t/69d7dbb80155f46e144ae2e5/1775754168227...

Global Advocacy. #NL51. Snippets! #SYNGAPcensus = 1,761. UT Arlington & Cook Children’s. #S10e204

April 14, 2026 4:35pm 9 min

Tuesday, April 14, 2026 - Week 16   Census is 1,761 https://curesyngap1.org/blog/syngap1-census-2026-update-54-q1-total-1761   Trip to Texas for UT Arlington and Cook Children's Systems innovation with Dr. Lal and Dr. P...

DSC-III and Data - CURE SYNGAP1 is working tirelessly to increase SYNGAP1 Knowledge #S10e203

April 03, 2026 8:03pm 9 min

Friday, April 3, 2026 - Week 14   Just back from the DSC-III Kickoff Meeting!  As announced back in September 2025.  Really strong group of clinicians.   https://dsc.rarediseasesnetwork.org/patient-advocacy-groups   More...

It is time to get ready for clinical trials, this is how. #S10e202

March 26, 2026 11:44am 9 min

Thursday, March 26, 2026 - Week 13   Thanks for NL50 Ed!  cureSYNGAP1.org/NL50,  I listened to Episode 1 and, as it turns out, it was March 12, 2021 (five 5️⃣ years ago), and it’s evergreen.   SEVEN THINGS YOU NEED TO DO...

We need to raise funds for the critical work of CURE SYNGAP1, join us with #Sprint4SYNGAP #S10e201

March 06, 2026 10:44am 9 min

Friday, March 6, 2026 - Week 10   WHAT DO WE NEED $ FOR? I talked in Episode 197 #S10e197 about scientific priorities, and in Episode 200 #S10e200 about areas of activity beyond science grants.  All of this is what we ne...

#RareDiseaseWeek! We are doing much beyond grants… too much. Get the Citizen Health App! #S10e200

February 25, 2026 11:35am 9 min

Wednesday, February 25, 2026 - Week 9   Thank you Virginie, Eric & Paulina for being in Cold DC right now with the Everylife Foundation!  https://www.linkedin.com/posts/curesyngap1_raredc2026-syngap1-curesyngap1-activity...

Support Clinical Trial Design for #SYNGAP1 via biobanks, EEGs and Fundraising. #S10e199

February 17, 2026 2:46pm 9 min

Tuesday, February 17, 2026 - Week 8   We are flat out, thank you to the team who work full-time on SYNGAP1: VM KAH LP PP & KF.   CLINICAL TRIAL DESIGN We are Angelman-like. (Rett also) https://aesnet.org/abstractslisting...

All #SYNGAP1 Families need to take part in our Natural History Studies: ProMMiS & Citizen #S10e198

February 06, 2026 11:56am 9 min

Thursday, February 5, 2026 - Week 6 Happy #RareDisease & #BlackHistory Month!   #NaturalHistory means how this disease progresses.  Reminder: We have only been at this for 17 years, first patients were identified via Ham...

Funding Priorities. Biorepository. Genetic Testing. How to move for a clinical trail! #S10e197 Monday, February 2, 2026 - Week 6

February 02, 2026 6:05pm 9 min

All US Families, please take the time to fill out the ProMMiS Survey. It takes 5 minutes. It's super important. Even if you haven't been there, we need your feedback. English: https://curesyngap1.org/SurveyProMMiS   Span...

Stoke Tx shows us that ASO Clinical Development is accelerating. #S10e196

January 16, 2026 10:23am 9 min

Friday, January 16, 2026 - Week 3   Stoke Phase 3 Rapid Recruitment - A timeline that is ours to beat! https://investor.stoketherapeutics.com/news-releases/news-release-details/stoke-therapeutics-announces-updates-timeli...

SYNGAP1 Related Disorder (SRD) Key Talking Points & why we need to use them. #S10e195

January 11, 2026 2:18pm 9 min

Saturday, January 10, 2026 - Week 2   Here are key talking points to reference when talking about SRD.   Please let us know your thoughts about how these could be better. https://docs.google.com/document/d/1lXaDQEVwF1K_y...

Becky Quick launches CNBC Cures, Finding Your Voice & Key Talking Points for SRD! #S10e194

January 09, 2026 12:18pm 9 min

Friday, January 9, 2026 - Week 2   Big news in SYNGAP-land, Becky Quick and Matt Quayle have a beautiful SynGAPian named Kaylie & they are launching CNBC Cures! - Wonderful to have more awareness of SYNGAP1, I hope it le...

Stockdale Paradox: Not getting out at Xmas, but we will win. #SynGAPCensus = 1,707. #S10e193

January 02, 2026 4:22pm 9 min

Friday, January 2, 2026 - Week 1   #SynGAPCensus = 1,707 https://curesyngap1.org/blog/syngap1-census-2025-update-32-q4-2025-1707/   From the Cantor Report on CAMP4  The Stockdale Paradox. The best way to succinctly descr...

AES ‘25 was incredible, Fundraising, PRV, Behaviors, Posters/Pubmed & Thank you. #S10e192

December 20, 2025 8:33pm 9 min

Saturday, December 20, 2025 - Five days till Christmas, 11 days left to raise funds to CURE SYNGAP1 AES was exceptional in many ways, here are a few: Rare & SYNGAP1 were both very visible, posters with our Logo and name...

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